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Old 03-26-2010, 02:19 AM
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Rrae Rrae is offline
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Shocked Oh Vsue65 !

There are SO MANY things in your post that jumped right out at me! It was almost like a 'Deja Vu' thing!
My problems started out exactly like yours!! Mainly knee problems from over-exertion on the tread mill...

And the 'burning' pain that you describe! and the cold feet.....oh my!!

I'm impressed with what some of your doctors have told you!
When my problems started at the knees, well, that's where the focus was and I ended up wasting THOUSANDS of $ on MRI's, Xrays, Synvisc (Rooster Comb) Injections, Cortisone Injections...ALL targeting the KNEES......

When in fact, after going in a HUGE circle of specialists, blood work, Chiropractors.....oh my I could go on all nite here...but this may be of interest to you!

Check out the PN (Peripheral Neuropathy) Forum !
Here is the direct link to click on...

http://neurotalk.psychcentral.com/fo...aysprune=&f=20

My issue ended up being in the peripheral/sympathetic nerve chain and the best treatment I've found was by targeting the Lumbar Spine, because that is the area of the spine that controls the nerves in the lower extremities! In other words,....after all was said and done, there was NOTHING whatsoever wrong with my knees and feet.
Not to steer you away from the RSD! But it's obvious that you aren't getting any clear direction just yet, and your story sounds so much like mine, I just HAD to jump on this!

There is such a fine line between RSD and PN that all too many Drs. basically treat it as tho they are one in the same.
The symptoms are so similar!

BOTH the RSD and the PN forums are active and full of wonderful people! I felt so compelled to have you take a peek at the PN forum and do some checking there as well.
See what you think, and maybe it'll help you in your questions to your Drs.... Sometimes they learn from US!

So glad you found this wonderful forum!
I sure wish I would have found this place B4 I rushed into a bunch of needless testing and getting the runaround from all the Drs!


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"Thanks for this!" says:
loretta (03-29-2010), Wilbyfree (03-27-2010)