To be utterly honest, Mere I feel just like you do.

Many days, especially lately, I want to sit in bed with the blanket over my head.

I guess that is not coping. It happens.

I am tired of having PN, and some one saying, 'Oh my feet fall asleep too'.

I am tired of saying I have Sjogren's and some one saying they have dry eyes too.

I am tired of telling people I have autonomic neuropathy and having them say, "What?"

None of it fits together in a neat little package....I just wish I could say I had a specific disease and have people understand what this feels like....truth be told, I don't know if any one cares. My husband as nice as he is, is burning out....

Yesterday, the nurse called with my ENA and said, 'Good news, your ENA is negative.' Well how dumb is that??? I kind of let her know that in an offhanded way. A negative ENA with highly positive ANA is not good news.

Yup, the blankie looks real good today. It looks even better on Mondays.