Im waiting for his full report which I should get this week. All I have at the moment is what his secretary read out over the phone. It doesn't say anything other than he's passing back to my neuro here (who hasn't bothered to see me since August).

His secretary has also given me the telephone number or the neuro opthalmologist that saw me. He said in 2008 it was MG but was over ruled. After he examined(this year in March) me he walked away with his students and told them all about MG so I don't think he has changed his mind.

Its very disheartening as at 36 years old I'm not prepared to be written off like this. However due to how the system works in the UK, my GP could block all further referrals. I'm trapped in a bloody nightmare.

I've shut down, I can only type. Really finding it difficult to talk to anyone. The pain inside me (emotional) is just overwhelming.

Thanks
Rach