Quote:
Originally Posted by Aw3sk3r
Hey everyone,
So I started Imuran last night and am scheduled for IVIG in a week. Does anyone think that there might be complications with starting both treatments so close together? This will be my first round with IVIG but luckily I talked my neuro into doing it out patient over five days... I am scared to be starting the Imuran, let alone doing the infusion therapy 
BTW I'm starting the Imuran due to the Prednisone not working after 9 months at 60 mg... and the IVIG because my strength took a nosedive in the last two weeks... Thanks again for sharing your experience  |
I have had mg since 1983 at 18 years old went to sleep one night woke up with eyes drooping thought stroke then to young for that.I am now 48 years old and was in remission for over 26 years, I had a heart problem in 2006 had to have surgery and had surgery bam mg back.So fast,anyway your question on imuran make sure you get blood test regular it takes a while to work so I dont understand if you are going to do ivig I would wait.I took 60mg of predisone for almost two years then it did not work well.I will say that ivig
is the best thing in the world I took 5day treatment in Hospital because I was in a crisis now I take ivig every three weeks at home my nurse comes to me
over a two day period it takes four hours each day she comes.Sometimes effects social life for a couple of hours ,but well worth it.Your doctor could
make arrangements for you to also do this in your home your medicine is delivered to your door,your nurse it has to be a RN in my state of N.C.You need your comfort of home and not a clinical enviroment you are already under stress from MG so make effort to comfort yourself.I have been in the medical field for quite sometime.Mostly in Hospice,@hospital so please ask your doctor for your comfort and enforce it.Oh forgot abouth your ivig dont be upset by this they will give you something for your headache, because they can be tough at times but they also get a bit easier with treatment
sometimes you stomach may feel a little funny but they also will have meds
for that.Best of luck to you GOD bless you be positive and you will do great.
Oh and also have you had you THYMUS GLAND removed yet if not go for it
small scar and also can help with remisssion.