Firstly a big thank you to everybody for your kind posts. I'm not in a wonderful place right now so I'm finding it very difficult to communicate. I feel like Ive just shut down emotionally and physically. I've put up with a lot of **** in the last three years, but Ive truly had enough this time.

I'm exhausted and I need some time to think and work out what I need to do next.

I can't do anthing until I get this report, I also need to write to the neuro opthalmologist who saw me who said that there were issues with my eyes and see what he thinks.

It aint over yet. I may have lost this battle and a few prior LOL! but I will eventually win the war.

I have a blog called

http://themyastheniakid.blogspot.com/

which for those of you who are new or those of you who don't really know me can see how very hard I have fought for the last three years.

In a very quick response to some issues raised:

CMS- the national centre of excellence, Oxford, won't test me for it. Its the only place in the UK where it is done. I agree it needs done but my hands are tied.

France- wanted me to see Oxford, they work together. Yes Europe really is that small LOL! So France is no longer an option.

Angela Vincent - A really lovely lady and have had correspondence with her , but she's a scientist not a Dr. So she cannot help me.

TA - thanks for the link but I have no headaches and it doesn't explain all the other symptoms. But great suggestion, we are looking at the possibility of Lymes disease as I could have been exposed to it.

I don't mean to sound glib or ungrateful as truly I'm not. I just feel so utterly helpless in all of this. Please keep your suggestions coming it might eventually lead to something.

Thanks for your support

Rach