The usual tests of raising arm, etc., don't show on me.

But there are times when my arms will turn bright red for no reason - the only problem is that I can't make them do that in front of a doc!!! It's not like a trick pony!!!

Babsie, I know how frustrating this all is. It was very hard, is still hard, for me to accept and understand that I have an incurable condition.

BUT, if you can get a VERY good pain mgt. specialist, you can work together to keep trying different drug combinations to bring down the pain so at least you can be the best you can be.



It's nice also to know that we are here if you need us.