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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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I've had about 5 IV solumedrol experiences in a year and a half.... and of course, for the days I have the IVs, it sucks. Actually, I didn't find it too bad...and I'm very sensitive. I was a little nutty from them (but it sounds like you're already struggling with that part of it from the relapse itself). It doesn't taste good while it's going in...and I ballooned up a little bit, but that went away within a few days. As well, my symptoms also went away within a few days of the steroids - so to me, the 5 days of mild-moderate discomfort were well worth it. I haven't had any infusions since last spring, before my re-dose of HiCy...it's the longest I've gone (prior to that, I barely made it 2-3 months without a dosing!).
Look, you're the one in your body - only you know if you need it. To me, if there's a chance of symptom reduction, I'd take it...but that's me...I hate feeling rotten, so I do whatever I can so I don't feel that way...and like I said, if it takes 5 days of yuckiness for improvement, I do it.
I also had my infusions at home and so it really was only mildly a nuisance. One of the times, I even worked during the day and had infusions in evening. Took only an hour and then the nurse was gone.
I do hope you feel better soon...no one deserves to suffer!!
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