Okay, then use the word "weak" instead of tired. It's more accurate.

I'm concerned that you say the Mestinon doesn't work. How much do you take? Mestinon should "work" for anyone with MG.

Do you know what they meant by "breathing too much?" Did they say the ABG showed "hyperventilation?" If so, that means you are nearing a crisis, usually. It has to be taken together with the clinical exam, breathing tests and O2.

I think when anyone gets an MG diagnosis, they should be given an MG book for free. Or any diagnosis. Then you can read up and know all this.

Again, if you aren't doing well, don't wait for an appt. I hope they can figure all this out.