Thank you so much for starting this thread for me. I really appreciate it.

I'm feeling a bit better today so I can think a bit more clearly and give you some more info all of which the Drs have been given.

Jan 2007 (approx 5th) Horrific migraine. Slurred speech, weakness down left side. All totally normal for me with a migraine. Ive had these since I was ten. As I get older they are disappearing. Last one was Jan 2009.

Jan 6th-11th facial numbeness and tingling like a dentists injection wearing off. Feeling pretty lousey but still working. Jan 11th eyebrow drops as does eye. Diagnosed with Bells Palsy given steroids, does nothing. Have awful pain in forehead where muscles are pulling due to eyebrow droop.

Try to continue working but neck is weak and resting on top of my back. Odd episodes of breathing feeling difficult. Arms and legs becoming weak.

have 2 MRI's both without contrast both revealing nothing.

Before all this time had problems with hands going numb put it down to carpel tunnel syndrome. Wasn't apinful just pins and needles so didn't see a Dr.

Also from 2006 started having really bad night sweats. All over not confined to one area. Now know if I have bad night sweats Im in for a bad day. Sweats are so bad sheets and blankets are wet. Only sweat like this when I'm asleep. So it happens even if I have a nap during the day. Hormones were tested no issues.

Also 2006 lost large patch of pubic hair - Dr checked it out when I was having a pap smear done. No idea what caused it.

2007 -June /July thyroid tests done, FBC and CBC , Liver, Kidney tested all fine. Cholesterol 7.2 - nothings ever been done about that. Glucose fasting blood test done think it was 4.1/4.2

late 2007 sleeping 12 hours a night and sleeping on my two days off. Finding it difficult to concentrate. Staff are telling me that my voice is sounding nasal and sometimes when I go to speak no voice is coming out.

August 2007 do ice pack test eye is open for the first time in 8 months.

Sept 2007 given neostigmine 15mg to try first tablet opens my eye after 20mins effects last about 4 hours. Really don't get on with that so try mestinon.

Vision inceasingly distorted, stationary objects appear like they are moving. Nodepth perception and double vision.

June 2008 end up in hospital as I can barely walk. iven steroids walking by day 4 of steroids.

July 2008 start going down hill again spending a lot of time in bed.

Blood tests for MG been done about 4 times at this point all come back negative. SFEMG done Aug 2008 negative.

See Oxford Oct 2008, tell me I don't have MG I'm stressed and I have ME. Told to come off steroids. As I come off steroids more symptoms appear, issues swallowing, choking and vision gets worse. Breathing becomes an issue. Taken to hospital Jan 2009 as O2 sats at 92%.

Now have issues with feet going numb.

Very recently having problems with an area of my left hip going numb. Basically where your knickers sit. Know its numb as have dragged a pen over the surface and can't feel it.

At present have a gland in groin swollen about the size of a quails egg. Keeping an eye on it.

After coming off steroids developed a very itchy rash, red discs, that flake in the middle. Mainly on trunk and arms. A few on buttocks and thighs. Been told its discoid eczema. Goes with cortisone but leaves a scar.

As for the BP wasn't dehydrated as had drunk through the night and the morning. I hadn't had anything when BP raised half an hour later as they hadn't got me any water at that point.

The only other thing I can add is heart rate. Can swing from 47bpm at rest then the slightest exertion eg sitting up it can go to 130bpm.

Also get bilateral ptosis especially in bright sunlight.

And if you didn't think I was a hypochondriac before you do now.