I'm going to try and answer your questions as best I can. Please if I miss something out remind me!

I have my MRI scans as I paid for one of those which is the most detailed scan. I forgot to say that I have also had CAT scans of my head and Thymus. All ok.

Cortisol- hasn't been tested.

Lymph node- Ive had one come up onmy neck hang around for a few weeks and then disappear. The one in my groin, makes my leg ache a little, reminds me of when I had Mono. No other nodes are up as far as I am aware. Ive been on the internet and had a look at what it could be because I have so much time on my hands! LOL. The advice there was to watch for 4 weeks, apply heat etc. If it gets bigger I will see a Dr. At the moment I am watching and waiting. There are lots of things it could be, but as it came up very rapidly its more likely to be an infection than something really nasty.

LP- had one done and they checked it for everything.

Annie I have absolutely no idea about those hormones you mentioned! Never heard of them, but hey I'd never heard of MG either!

ME- My sister has it, ME gives you leisons on the brain stem and there is actually a protocol set down by the world health organisation of tests you should complete before giving this diagnosis. Unfortunately many Dr's seem to think they know better. (haven't I heard that before somewhere?). Yep and you are right ME patients do have traces of viruses in their blood. They also have hearts that work at 50% capacity. That's why ME can be fatal, another fact covered up by the medical profession (some of them realised thats a sweeping statement and unfair to the good ones out there).

Sarcoidoisis - heard about it on HOUSE! god I wish he was my Dr! I will take a look tomorrow. With the time difference I'm going to bed once Ive done this post!

Heart has never been tested other than your basic ECG.

I have my records but only the bits I am allowed to see. Under UK law a Dr can withold all or part of your notes if they believe the information contained within them could cause you harm. I'm not joking this is the law. It cost me £10 to get them and my local consultant has witheld all his notes!

I have had an MRI with contrast as well and that showed nothing as far as I know.

My concern is theres more than one thing going on.

I do have joint pain, I always have had pain in my knees ankles and hips. Always told it was growing pains, Im 5ft 9in and haven't grown since I was 14! Ive been tested for arthritis but nothing. I do have one leg longer than the other and have put the pain down to that. The joints are never hot or swollen.

Had an ANA test and that's negative.

Forgot to mention Dry eyes, which I had a couple of years before I got ill.

Checked B12 thats ok. Checked coeliac, but everytime Ive been tested Ive actually been wheat free. Had a colonoscopy around 1999-2001 time I had inflammation in my bowel, but it was within normal limits. I have a hiatus hernia around 4cm - had an endoscopy in 2002.

Forgot to mention the Ryanodine antibodies. Probably because I felt like I was going to collapse at the time. Sorry!

Thats all I can think of at the moment and I want to go to bed! So night night and thank you!

Love
Rach