Nice catch, Jana!!! You might have figured it out. Go boffins.

Thanks for the input, Nicky. Rach needs all the help we can give her. Ally too, for that matter.

http://emedicine.medscape.com/article/1229262-overview

I feel stupid. My Uncle died of sarcoidosis, while I was in the hospital during my crisis, and I knew about this from lupus patients too.

That article is very good, Rach. See what you think.

I think the interesting thing is that you were given steroids and you got better. Steroids do help sarcoidosis but they also help MG. Not CMS though. Steroids help Bell's Palsy. But maybe it wasn't Bell's but sarcoidosis. Dry eyes can be caused by sarcoid but also by MG due to the lack of acetylcholine.

I cannot believe they haven't tested your heart with such low oxygenation. An echocardiogram and chest CT are often done to rule conditions in or out when someone needs oxygen!!

They can withhold records here too but ONLY if it means you are of imminent harm to yourself or others. As in a psychological problem or if you are suicidal or something like that. They cannot withhold records here "just because." Like one of my past neuros did. And especially not when they are withholding evidence of any condition or disease.

If you don't get enough oxygen to your extremities, they can feel weak or numb. I am now wondering about your low BP. I wish I could swear right now.

And it makes what happened with your GI tract make sense too (sarcoid).

If you can get your hands on the chest CT, that would help. Not very many doctors know about sarcoid or understand it. It usually does involve Pred. And oxygen.

At your young age, to be on oxygen, is not normal. That alone should've kicked these doctors into high gear. They haven't even gotten out of neutral. I have my doubts that they even have keys to the doctor car.


Annie