Quote:
Originally Posted by cyclelops
I have SjS diagnosed, but I have some issue with the way it is diagnosed. The diagnosis of SjS is very loose these days. Do you want seronegative? Seropositive ANA, or ENA? Lip biopsy?
I don't post the meds I am on for privacy reasons.
I am on IVIG for my neuropathy and elevated ANA.
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Good question..I am seronegative at this point with neuropathy involvement, but I want to hear from all those with sjogrens diagnosed or suspected with neuropathy going on at the same time. I too have my doubts about how they diagnose Sjogrens....thinking the criteria needs a check up. Dr. Birnbaum at Johns Hopkins Sjogrens clinic also agrees. Thanks for your reply
