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Old 04-01-2010, 10:23 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Heart

Tyson, Do you get panic attacks? Some of what you are describing could be that.

When are you having plasmapheresis?

And did you mean that your doctor said an infection was "covered by your Prednisone" or that the Pred is masking the infection? The second would more than likely be the case. And being immunosuppressed makes you more open for infections. How do they know you have an infection? Blood tests?

I still think you are in denial. If you keep pushing, you will end up in the ER again.

The body becomes "worn out" after too much of this pushing it to the limit crap. Think about what the treatment of plasmapheresis alone does to your body. Now think of having to do that when you are 50, if you make it to that age. Yeah, I'm trying to scare you. You have to manage MG with not only drugs but with alternating rest and activity. Even if you reach remission, you still will not be able to "push" things or you may go out of it.

You have to decide what is best for you. Is your pulse high when you do the littlest things? Are you still getting dizzy, like say when walking? It's always better to be safe than dead.

But I think you need to back the heck off on activity. Maybe spend some time, out in nature now that it's spring, and really think about what you want your life to be. You can't keep pushing like this.

You know I care. But tough love is really what you need right now. Please slow down. Not stop but be realistic.

Annie
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