I don't do well at the Parkinson's meetings where everybody is very polished, looking with confidence and wisdom at their Golden Years.
Awareness would include the 48 volunteers who were savaged by the Amgen experiment. Awareness would include inviting a senior person from Merck to step forward and tell us about the global shortage of a vital drug; the only treatment in the past half century, which suddenly became too hard to manufacture. Awareness would include that alternate therapies - food, vitamins, dancing, exercise - using parts of the brain that Parkinson's does not attack - rarely receive research money, or mention.
Awareness would include that, according to a study published in the Lancet, a prestigious British science magazine, 55% of medical research reports are never submitted for review or for publication (why not?) and of the 45% that are handed in for peer review as required, 31% of those falsified, substituted, modified, or completely invented the primary conclusion of the research. The "abstract" is a lie 31% of the time, not what the data said. But everyone reads only the abstract.
We are talking science fraud of staggering dimensions. I don't see why Parkinson's orgs. can't denounce that.
So, yeah, it is a vital question. This is Parkinson's Awareness month. But how much of the Parkinson's Cartel really, really wants awareness? They don't even want us to have access to the most basic information. They hide studies from each other; no way would they let us have a look. They figure they own the disease; we are paying passengers.
It would make a good sit-com; possibly in a flash-mob way; a street performance that is suddenly there and suddenly gone ten minutes later. The situation of Parkies is so absurd that it lends itself easily to humour, and people take lessons well when they are mixed with humour.
Mostly, though, think viral marketing, think YouTube, etc. And not just the usual "Here are the verbal placebos created especially for a boring video". A mixture of humour and ferocity, that would get clicked around the world. A series, not just one.