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Old 04-03-2010, 10:08 AM
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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I had this mistake happen before my dx with rsd. From that point on I will not even allow a doctor to touch my leg. No finger,no reflex test etc. All the rsd specialists I have see have been ok with this cause they know that some people it send them into a horrible flare up. I know when I went to Cleveland Clinic I was pressured by the PT lady but would not allow it. For me I try to do touch myself lightly and try new fabrics. I try to increase the time on my legs etc. I have read a lot how with rsd when the patient touches there area it is easier for them to tolerate then someone else. You are not a bad mom and I have read many stories of people having similar happen. It seems like part of rsd treatment course is having to face things that don't work. FOr me this condition has really made me use my voice to doctors. It is like a catch 22 because I want to be out of pain so much but over the last 3 years I have learned what makes me worse and so I won't be pressured into something now. Does this PT person work with a lot of people who have had rsd? I really feel it is so key with doctors and other treatment people that they know about rsd. It is treated so different then other conditions. I know as mom you feel helpless that is what my mom always says. It is so hard to watch your child in pain. For me as the patient just having my mom listen,comfort and help me hold to hope has really gotten me through. You being on here shows that you are a great mom. If you want any support or I can help in any way you can DM me anytime
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"Thanks for this!" says:
loretta (04-14-2010)