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Member
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Join Date: Aug 2006
Posts: 372
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Member
Join Date: Aug 2006
Posts: 372
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the problem lindy is the all mighty dollar. many of us live on the disgusting pitance given us by social security and have not enough funds to spend on the luxury of an airline ticket, not to mention hotel rooms, food, rental cars, etc. now, if one of the non profit orgs who have the money to foot the bill for everything else would dig into their huge supply of funds kept in reserve for "research" maybe we could turn the dream into reality. i nearly puked when i heard one of these orgs had reached the billion dollar mark in donations as i was looking for a place to find a caregiver that did not charge me 20 bucks an hour since i am 100 dollars over the poverty level and not qualifiable for government aid. i even called the two local orgs and recieved the info that they did not have funding available to help me. i asked just what did they do with the money and received the answer that it was used to line the pockets of the staff and their traveling around the country setting up conferences. oh yes.. and of course research. "sorry, we cannot help you." oh, i did get 300 dollars worth of taxi vouchers for a year. this supplied 3 trips by taxi to my doc and back.
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I have a post-encephalitic neurological disorder, but it does NOT have me!
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