Quote:
Originally Posted by MarissaLB
Thought I might find a support group but found this forum first. I am a 30 somehting female recently diagnosed with the trigem and occipitol neuralgia among other things I may have going on. The pain began at the same time I had tooth pain and root canal procedure in mid august. I have am exhausted with the pain. I had nerve blockers last week to no avail. I am consumed with the chiro, PT, Medications x-rays etc etc etc. I am a wimp ! I am so thankful not to have a termial illness of any sort but @ the same token i am losing my mind to this pain and emotional tole I am going through. Everytime I do get som pain killers that work I have to play catch up on my home.... dishes family, laundry, housework etc. ( iam a homemaker husband ... 2 kids ... dog and hamster) I am used to a busy lifestyle.... going, doing , participating, LIVING ! I ahve no real quality of life much anymore. I am also only @ the six month marker and I know that i have quite a way to go fom here.
Hopefully this forum will give me the outlet to vent to people who understand and a place for me to share in the experinces of others.
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I also had the root canal before the neuralgia attack! I think more dentists should be aware of this connection! I had a chancre sore (cold sore in my gums) and did not think anything of it when I had the root canal, and I am positive that was what set of the trigeminal neuralgia.!! I went to Portland Or for help and the neurologist there put me on carbamazapine (tegratol) and that stopped the pain. After several months on that drug (nasty side effects) I eased off the pills and the pain has not come back. I still have occipital neuralgia that I control with ice packs and sleeping pills when I do have a bad attack. I eat oranges to boost my blood sugar if I feel pain starting and lie down with an ice pack and sleeping aid or anti nausea suppository. I am pretty OK now but I have been to hell and back. The TN was the worst pain I ever had and I know pain as I also get occasional kidney stones that put me in the hospital! Good luck and check out the Portland Neurology doctors..I forget the name of the Dr that helped me..started with B..........that was in 2004. good luck all