Originally Posted by stranged

Just found this site and im greatful for all the useful information.My story is this.For ten years I had migrains,dizzyness,walking gait problems and occasionally some speech problems. Saw my Dr. on several occasions with my list of systems always the same answer he thought it might be menstal. Finally got a mri and it showed a cyst on my brain stem at the time I was 37 after years of now realizing the learning disablies rages headaches we found the problem. After the diagnoises for the arachnoid cyst I went in 2 weeks later for a shunt. I have has numerous problems since. I have pain throbbing in the back of my head in the exact area of my shunt. Dr. put me on seizure meds which helps my pain. I still have all the symptoms I had before. I get MRI,s every year in see if it has grown of festered. Dr. says the tubing has calcified on fluid is not flowing like it should be. Since my operation my nero doctor has moved out of state and I am having problems finding a doctor with his knowledge on my cyst. I flew on a airplane once for vacation but realized after that when my head felt like it was going to explode I cant fly because of the pressure,I love to fly to Ca to see my Dr. that operated on me beacuse I have so many questions regarding what im up againist for the rest of my life. I hear that some people have in revisit the shunt my memory isnt that good but I dont ever remember him saying I would have to do this again. If anyone has this situation or any awswers on this I would appreciate it. My shunt has been in for 9 years now. Thanks for all you reading my story.Diana