Thread: SCS Newbie
View Single Post
Old 04-05-2010, 11:18 AM
KatTru KatTru is offline
Junior Member
 
Join Date: Mar 2010
Location: Texas
Posts: 9
10 yr Member
KatTru KatTru is offline
Junior Member
 
Join Date: Mar 2010
Location: Texas
Posts: 9
10 yr Member
Default

I have CRPS in upper torso and limbs, face and back and I've had my SCS several years. My first pain specialist did the operation and the stimulation was wonderful. Then the pulsation bothered me and I used it less and less. It was reprogrammed and felt better, then felt worse. My pain specialist retired and I have a better specialist. He took me off morphine, put me on ketamine and it was the best thing! Had my SCS reprogrammed but it kept pulsating too much and didn't help the pain at all. Then he mentioned having the frequency turned up, which I'd never known they could do. That helps with pulsation and gives a smoother stimulation. Now I have it on every day, even sleep with it. Higher frequency runs down batter life faster but the newer batteries can be recharged by the user. Right now I have the older battery but soon will be getting one I can recharge.
My sister has an SCS and loves it. Unfortunately my aunt tried it and said it made her pain worse so it was removed.
SCS's are not for everyone, but the technology is getting so much better. I pray your surgery went well and the SCS is working for you.
KatTru is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (04-06-2010)