First thank you all again. I really appreciate it. I do feel that many of the RSD docs have there "thing" they do and don't always base it on the patient. Though we all have the horrible pain of rsd we all respond so different to treatment and why I don't like the one size fits all.
Keepsmilin I am glad you benefited seeing him. Are you going to do the ketamine? Sorry I am a little confused.
Wswells right there with you about the coma. There is no way for me but everyone is different. What part of FL are you in? I am in Southern FL.
Daylilfan I can't say I was happy with my treatment there. I felt they also have a certain thing they do as the starting point is a tunneled epidural catheter and then you do PT everyday. Everyone I have read who has went to CC for rsd has been suggested this. If this does not work then you go onto more invasive like scs possible. I do know someone who sees Dr Stanton Hicks who had a scs done and she is doing much better but she did the cathter etc before. I too drove 4 hours to see him each way so I understand that and he spent like 10 min with me. You can email me or anyone else too if you want more info.
Thanks again.