The neuro follow up today was as always more bad news. Ty isn't working. She wants me on it for 3 more months, and we will redo my MRI. If there is no siginificant improvement in june, she is pulling me off of it and I am going to be shipped out to UVA for clinical trials.

As of today, she says it is most likely PPMS. But she will not write it on the chart because the insurance co will not cover anything. And I left with a whole stack of prescriptions. Lets see, we have.... tramadol, voltaren, ambien, neurontin, provogil, detrol, and celexa.

Oh and she is mad that they didn't do the blood work at my last Ty infusion. She told me next time they try to skip the bloodwork I am to refuse the infusion until they contact her.

Wants me on Ty for another 3 infusions to have at least 6 months to look at for the studies, but told me not to get my hopes up.

So that's where we are today. Nothing she can do for the numbness, nothing for the ear ringing or the ON since it is brought on my over stimulation and not just from lesions. Nothing she can do for any of the other symptoms, if the tramadol/voltaren/neurontin don't help with the aches and joint pain, she is recommending that I reconsider opiates.