Quote:
Originally Posted by tmullen
hi everyone! i haven't posted in a while, but have still been reading. let me fill you in about what i've been doing the last month or two.
i had ketamine infusions over four days, i got relieve in my right arm, but it only lasted about 8 hours. Now were in contact with a chiropractic neurologist up in san Francisco. he says i need to be on a gluten free diet, since gluten is an inflammatory. anybody else been told that?? i was doing the HBOT, i probally had around 70 hours, but found no realive. the place was an hour away from my house, so the drive just wasn't worth it.
over the last week or two my palms have been getting extremely red, sensitive, and the worst burning pain ever!! my right arm has also had the twitching. my rsd is not in my left arm, but is in my right. i'm starting to worry that this monster is really starting to take over my body. on somedays i can't even use my walker becuase my hands, are so sensitive
for those of you that don't know i've had rsd for six years, starting in my right leg crossing to my left up my back into my right arm.
hope this finds everybody doing well  |
Hi Tmullen and sorry to hear about your short lived pain relief. I too have had rsd/causalgia for about six years. The same year I was diagnosed with this I was also diagnosed with Celiac Disease. That is the name for gluten allergies. I have been told that they are not interlinked, but the more I am learning, even from personal experience, I believe that they are. If you are allergic to gluten, you have to go on line and find the diet, there are many, but mainly, I eat protien, salad, certain cheese, many fruits but not all and many of the grocery stores are now selling a variety of gluten free snacks. Once you learn the diet and follow it without cheating...and honestly it is hard to do, you will feel much better as well as reduce some pain. Be patient with yourself, it takes awhile for your body to adjust to the diet, about a year for me, and trying to manage both the celiac and rsd is difficult. When my stomach gets upset the first thing I want is a saltine cracker....NOT... those little habits were actually killing me. You are welcome to PM me if you want more information. Following the diet does help the rsd pain, but more importantly, it can and will make you very sick. Sorry to hear you have this, but you do get use to it and I promise you will feel better.
Best Wishes
Jeanie