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Old 04-05-2010, 09:37 PM
bpkaper bpkaper is offline
New Member
 
Join Date: Mar 2010
Location: Delaware
Posts: 4
10 yr Member
bpkaper bpkaper is offline
New Member
 
Join Date: Mar 2010
Location: Delaware
Posts: 4
10 yr Member
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Quote:
Originally Posted by KatTru View Post
I'm a new member also and want to reply to your post.
I've had CRPS for many years, upper torso and limbs, face and back. I had the blocks also and they only helped for a few hours. I was on morphine for a few years until my new pain specialist took me off that and put me on ketamine, which was a Godsend. I got my mind back and felt more energy.
I've had my stimulator (SCS) for several years. At first it helped but the pulsation started bothering me. My new specialist had it reprogrammed with a higher frequency which makes for a smoother stimulation. I now have it on 24/7. My sleep is deeper which makes for a better day. I still have my bad days which bring me down, and I deal with depression but thru the years I have learned to live with it. My husband is a great support. I know what your husband and you are going thru and I pray and SCS will help him. Keep in mind that SCS's don't work for everyone. My aunt had the implant and she couldn't handle it. But my sister has one and praises it.
Has your husband seen a counselor? I've seen a psychiatrist since the first moment CRPS was diagnosed. I was taught deep breathing exercises, meditation and biofeedback and that helps a lot. CRPS is hard to accept, and there are good, bad, and worse days. I count my many blessings: spouse, home, food, family, pets, and I try to think of these things when I am very depressed. I watch the birds thru the window on rainy days (which is really bad on CRPS), and sit outside on good days. My memory is bad (part of CRPS) so I keep a list and calendar.
Your husband is very fortunate to have you, and I praise you for asking for info to help him. Please remember that even tho he is suffering and you do what you can for him, you need to have time for yourself in order to refresh your mind. Then you can be a better support system. I pray for you both.
Thank you for your post. Wow, I cant imagine dealing with what you are going through. My husband just received word that the CRPS is now in both of his legs from the waist down. This is definitely been a rude awakening. My husband is on the fence, more off than on, about doing the trial stimulator. He has lost so much weight that he doesnt think he will be able to be comfortable with it in. I am glad to hear that it has worked for you. I pray that he will at least try it and see if it does give him any relief. At this point some is better then none. His pain management doctor keeps increasing his meds everytime he goes to see them. In fact he goes again tomorrow. I will mention the ketamine to him and have him talk to his doc about it. The meds he is on now really throw him for a loop (me too). Thank you for the info, we will definitely use it. Yes he does see a psychiatrist on a regular basis. In fact the whole family does. The children are having a difficult time dealing with the mood swings. Happy go lucky one minute to horrific pain the next. Its hard to know how to handle it. Thank you for your words of encouragement. Please feel free to contact me anytime. Pam
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