I am in the process of getting all my labs and putting them in your worksheets. Thank you so much for putting all the effort into those spreadsheet. I DID stop drinking all alcohol on March 1, 1998. And the PN started approximately May 2006...that is why I've had a hard time agreeing with Alcoholic Neuropathy Dx. The neurologist stated that he thoght I had done the nerve damage when drinking but it didn't show up until I started the normal age process and my nerves started to "die off". Then the damage became noticable. But with the recent rapid progression, I think the Alcoholic neuropathy DX is off the table.

The initial symptoms I had were as follows:

foot pain in ball of foot (burning) during pregnancy in 1999. Thought this was due to weight gain. It was a burning pain and was relieved when I got off my feet or took my shoes off. Had baby - finally lost some weight - still had burning foot pain (both feet at this point). Diagnosed with Morton's Neuromal. First Surgery June 2005. Neuroma's grew back by November. Second Surgery February 2006.


May 2006 - experienced the following: severe burning pain both feet tops and bottoms. feet cramps. nightime leg cramps (every night). lower leg twitches - hair loss - depression (lifetime thing - sometimes worse) - right wrist pain - jaw pain - night sweats - cold feet - heart palpatations. (much of this probably was anxiety too)

Summer 2006 - pain in feet went from burning to shocking to stabbing to broken bone pain. pins & needles started in tips of fingers.

Fall 2006 - started Sacral Occipital therapy and tried no flour/no sugar meat & veggies only diet. Diet seemed to help with pain levels but couldn't maintain it past 3 weeks at a time. The therapy helped tremendously getting me aligned and my jaw felt much better. Felt great for a while. Also started on the Topamax. Between diet and Topamax, lost 25 lbs. back to pre-baby weight!

Around Christmas to now, started to notice spreading in my hands. In the past two weeks the prodding/stabbing pain has significantly expanded to include my upper back, side, trunk, upper arms, and upper legs. My neuro is increasing the Topamax to 150 mg twice a day. Feet are burning, rock in sock feeling, shocking, broken bone feeling, etc. Fasiculation in entire leg now.

I am also noticing my head and face is becoming really sensitive and painful. For anyone out there who has long hair...you know how it it when you have your hair pulled tight up in a bun a long time and then you let it down and your "hairbones" hurt. My hair is starting to feel like that all the time. And the other day, my lady was waxing the ol' eyebrows and plucked a straggler and I thought I was going to go through the roof. The nerve she hit went from my brow and curved down my cheek to my teeth. Ouch...I actually took an extra Neurontin to get rid of that pain. My eyes are so scratchy!

Anyway, that is about as good a timeline as I can give. Thanks for your input......