Hey guys,
Oddly, despite tapering off my prednisone BIG TIME (much faster than was recommended by my neurologist), I am feeling much better lately...My regular neuro. wanted me to remain at 50mgs/0, as did the second one I got a second opinion from, but I know that it isn't really doing any good for me MG-wise...It has taken care of the arthritic and allergy problems I had gotten used to, but not the MG...So I went ahead and tapered from 50mgs to 30mgs, and I haven't noticed anything- that was a couple of weeks ago...I let my regular neuro. know about this (in case anything bad were to happen)...Some (in terms of intensity) of my arthritis pain has returned, and my allergies have come back (itchy. pimply arms), but I'm okay with that...I can deal with it...By the way, i don't recommend doing this rapid tapering...It was going against my doctors orders, so please, no one do the same based on what I've said...Most people do very well with prednisone who have MG (in terms of taking care of a lot of the sx)...I think that I'm an odd exception! lol
The dosage of prednisone I was on basically turned me into a hermit...I felt more weak from it than before I took it in many ways, it made me crazy, made me look crazy, and all the other things that go along with it...I now am super vigilant with my mestinon (which I wasn't really before, I have to admit), and this helps...i still have periods of intense weakness, but this is no different from previous times when I was at 80mgs of prednisone, so might as well get rid of 3-4 existing/possible diseases, and stick with just the one...
Anyway, I started Imuran almost a month ago, and haven't really had any problems...I've been having intense headaches, but I get them in the morning, especially when the weather's been very warm, so I think that it's from something else....I mentioned it to my neuro., and he said to just take note of it, and if it gets terrible, to let them know (it hasn't been terrible yet)...
I was wondering if I could ask a favour of you guys...Are you guys who have taken/are taking Imuran able to list when you started taking it, what dosage, side-effects, and intensity/type of weakness you experienced from MG prior to starting it, and what it took care of (in terms of the MG) at the peak of your treatment? Also, if it's worth it to you to have taken it, and so on...I'd really appreciate it!
I hope that everyone's doing well...I noticed that a lot of the usuals aren't posting as much lately...I hope you guys are doing good where you are...I miss seeing everyone's posts!
Nicky