I hear you Dej and all and understand.

Being an old fart, who has had MS, since before DMDs, I have seen and had all the frustrations of having a "there is no cure" disease....and then a "oh, we have some meds now, but they don't seem to be for you" disease and now a, "sorry, you missed the boat" SPMS disease.

I dropped my, by the book, Neuro and just see my great PCP, who hugs me when he comes in the room, because he can't make my MS go away. He helps to keep me healthy, otherise and treats my MS sx, if I ask.

Like Dej, I'm not asking anyone to follow my path, as we all have our own path we must follow.