My choices are now down to
1. the "my way or the highway" guy. He is strict, and doesnt want to explain himself when you question him. His team DOES explain things, and is very helpful, but to sit in front of him is not.
2. the original dismissive guy who made it clear that while he can handle and MS patient, MS isnt his speciality, and he thinks I should lose more weight, get MUCH more active, and I get the feeling that he thinks I am whiney.
One thing that MUST be remembered is that I also have this glioma thing in my head. Simply pulling away, and stopping all medical contact shouldnt be allowed to be an option in my world. Medicating me till I start running out of injured body parts shouldnt be an option either.
Since I live not too far from another state, I may start looking over the border.
I LOVE my MS team. LOVE them! they have been tremendous in helping me, but with this guy leading the team, I dont feel I am going to be heard, nor will my voice be taken into consideration. I can always stand up and roar, and turn into an aggressive person on them, and demand my own way. I would prefer to be a team with my MD and not be treated like a child.
For now, I am just going to sit here. I am NOT taking my shots. I am waiting for all my blood values to return to normal before I make any decisions. I am in less pain, but still painful. I have started to eat more than jello now, and my local MD has been quite helpful.
Thanks for letting me whine. Have you ever just been so depleted by the whole process that you wanted to quit?