Hi Angela, I'm so sorry that your also in so much pain..I live in Michigan and I dont have anyone to talk to either, I found this site yesterday my Dr told me to find one I'm amazed how many people have to deal with this.

my girls are 4,7,9 and before the surgery I couldnt do anything after about a week after surgey I felt a little better now its been 5 weeks and the pain is coming back worse if I'm walking..I just dont know what to do and I'm terrified looking at some of these comments and knowing this could happen to me the spreading of the disease. Thanks for taking the time to talk to me, North Carolina is Beautiful we go to Ocean Isle beach every year.