Thread: Tysabri Information and Check In part 2
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Old 04-08-2010, 02:17 PM
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
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Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
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I had #44 Mon; same as the 43 before it

Yesterday I spoke with my case manager to get switched back to CO from AZ. He confirmed the 42 pml cases thru 3/10, 15 in the U.S and stated there are 60,000+ users (37,000 U.S.). I then asked how many infusions the 2 newest pml cases had-didn't know and then asked how many people had been on it over 3 yrs didn't know that either. Told him since the risk is higher the longer on it (as Biogen reported) we want to know how many cases of pml over 3 yrs and how many people on it (still on it) since 7/2006.

He did say the FDA still approved the 1/1000 ratio. I want the info like we got it before 7/24/09 and told him so.
Linda
I just read new info on pml cases 41 and 42. One had 30 infusions the other 34.
Last edited by Grammie 2 3; 04-08-2010 at 02:45 PM.
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