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Originally Posted by Lisa in Ohio
can anyone help me to understand what full body and internal RSD are?
I was diagnosed late with RSD and am currently waiting approval for a SCS.
Not sure if this is a good thing, but the Doc. said if this does not work nothing will. I am now having kidney, neck and head pain and am hoping that this is not a spread of this disease. Thank you all for being willing to share your stories and concerns, until I got lucky and found this site, I really felt all alone. My heart goes out to all of you and your families. Thanks, Lisa
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My daughter has FB RSD. Her GI, Kidneys and Female Organs have all been affected as well as her skin and the typical burning pain in the limbs. She however has that pain all over as opposed to the injured area. Migrains, Jaw Pain, and internal bleeding from the kidneys are a part of it. She aslo has Gastro Paresis from the GI tract (upper and lower) shutting down.