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Originally Posted by bubbleshea
My daughter has FB RSD. Her GI, Kidneys and Female Organs have all been affected as well as her skin and the typical burning pain in the limbs. She however has that pain all over as opposed to the injured area. Migrains, Jaw Pain, and internal bleeding from the kidneys are a part of it. She aslo has Gastro Paresis from the GI tract (upper and lower) shutting down.
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I'm so sorry your daughter has this terrible disorder. I'm a Mom with it, including the internal area and full body. What kind of treatment is she getting. I'm fully mobile thru physical therapy, massage therapy and swimming with exception of one hand- 50% frozen like a claw-delayed diagnosis and treatment. I have a wonderful neuro, psych, and pharmacologist call him my 3 in 1 doc. I'm thinking of HBOT treatment. He just built two clinics with them. Arizona Lots of wonderful informative, caring friends here. Please let us know how we can help. One of your new friends, loretta