That is a good idea - to get a copy of your records. I will do that.
This is the first time I have seen any information about anyone going through what I have . I am sad that this has happened to all of you , but feel much better knowing that I am not the only one.
I have had a B12 deficiency for a very long time. It was a year and 1/2 ago that it finally came up on my tests. I had not been able to feel my feet for 10 years ( since a spinal cord injury requiring surgery) The numbness and pain were increasing to the point that I Could no longer feel my legs and fell down 3-4 times a week, I couldn't sleep at all and the deficiency started causing other problems like loss of feeling and function of my arms and hands, mental problems and finally gastric stasis. It was horrible! But none of the Doctors I had seen believed me. Finally, tests for intestinal obstruction with no abnormal results caused them to look further. My level was 183. But they told me "Not low enough to cause problems" I insisted on starting injections, I did not even have the energy to raise my arms to wash my hair. After 8 injections of cyanocobalamin I could feel my toes again! I got more and more feeling back with each injection. But I still had the pain, cramping, spasms and what I can only describe as fireworks shooting down my legs. While researching the subject, I found Methylcobalamin. This changed my whole life. I started taking 5000mcg sublingually along with the injections. The pains began to reduce in number and strength within a few days. After talking with Pat from Jigsawhealth.com I started increasing the Methylcobalamin gradually to 5000mcg 4-5 times a day, along with his version of B complex (reasoning that you shouldn't significantly boost one B without increasing the others at the same time since they all work together) After taking these , it is like a miracle!!! I have absolutely no pain whatsoever. and I have full function of my legs and hands. You would never know that I had had a severe spinal cord injury. My strength is improving daily and my stamina is beginning to get better too. Many other problems have resolved as well, like no more tinnitis, no intestinal upsets, my skin is no longer dry and itchy, no more depression, the list is a page and 1/2 long. It is unbelieveable!! Yet with all these improvements, my doctors don't seem to be taking this seriously. After saying that they would love to see any information that I could find on the subject, they have not read a single thing I have given them. I know there must be thousands of people out there who would benefit from this information, but they don't seem to pay attention. I began to think that perhaps I was the only one, and that maybe they were right and I am a little bit goofy. But after studying the subject and reading this website-- I know I am not! There are others out there who are not being treated , and worse - being treated badly because we don't fit the information that they know! These guys are having a fit about how much I am taking , but it is working. I have not felt like this in years and years. I have my life back !! There are so many things I have missed that I can't wait to do. I would recommend to anyone that is contemplating taking this to "Just try it" It won't hurt you and the results are seen fairly quickly ,in most cases, from what I have read. And it is so inexpensive! Even with all that I am taking, it is costing less than $60 a month. And I no longer need all those expensive medications the doctors want to prescribe.(most of which only make you worse in the long run) It is definitely worth a try!!

I do have a few questions tho , If anyone knows the answer I would love to hear from you.
Since I am taking 1000mcg of Cyanocobalamin every other day , 5000mcg of sublingual Methylcobalamin every day and timed release B-complex with 1000mcg of Methylcobalamin 2 times a day, Why can't I back off the injections without getting numb toes? With this being an inferior form of cobalamin, I would think that I could stop injecting so often without a problem.
( I have had one source tell me that it is acting as a catalyst for the oral forms? Does this make sense?)

And my husband and kids are taking the oral vitamins too. They have the sublingual dissolve in about 15 minutes. I, on the other hand, always take about 1 hour to 1 1/2 hours to get it to dissolve. Why?

I am sorry this is so long, It is actually a VERY condensed version of the story. I believe I have had this since birth. And that my mother and grandmother had it also.

This is wonderful to have someone to talk to about this that understands! Thanks!