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Elder
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Join Date: Jan 2008
Location: Vermont
Posts: 6,726
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Elder
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
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My neuro is not an MS specialist. If I had a stroke or something, I would probably feel confident with him. He's the only game in town, but do I trust his advice? Not especially. He told me to use the autoject to avoid the IPIR from Copaxone, which is bogus. And he told me that I "didn't have enough lesions to cause the fatigue" I described. What?
I stopped taking my Copaxone 5-6 weeks ago, and I haven't made an appointment to go tell him yet. I really don't think he has enough experience with the DMD's to make a good recommendation, as if it isn't a crapshoot to begin with.
I really want to take some time before (or if) I decide on any other DMD. I know he'll pressure me to start a different one, and probably scare the jibbers out me thinking I'll have a massive flare-up if I wait. (I scare easy)
I'm sort of starting not to trust ANY med at this point. I even think my vitamins are going to jump out of the bottle and slap me.
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**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
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