Like Wiz said, our neuro is widely known-I was told by a traveling nurse he's known around the world.
He has been involved in the ampyra research as well as others. He told me as soon as I show negative results, or whenever I want to discontinue being in the trial, he'll pull me out.
"I'm there for you first," he said.

The direction of my care has always been my decision, after discussing everything with DH & me at length.
Guess I've answered my own questions...thanks for being great soundingboards!!