Quote:
Originally Posted by edever34
I just finished sending Larry King and CNN and e-mail expressing my extreme dissapointment at the fact that RSD was not even mentioned on the Heroes segment. Not to diminish Mackenzie Bearup (the teenage girl) but I stated that if she had Cancer,M S , Muscular Dystrophy Etc that if would have been mentioned. I asked them if this omission was done on purpose and to please respond back to me. I am still so angry at this missed opportunity to raise awareness that I could scream.
I am asking everyone on this site to also send e-mails to CNN.
Fondly-Carol
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http://www.cnn.com/2010/LIVING/04/08...ex.html?hpt=C1
~ Sandra
The Bearup family have been offered an episode on home makeover edition (TV show) as well, for teens who do charity work