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Old 04-11-2010, 09:48 PM
erica21 erica21 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 27
10 yr Member
erica21 erica21 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 27
10 yr Member
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Quote:
Originally Posted by Hockey View Post
Hi PCS Learner: I agree with the others that there is no exact road map to recovery. My head injury was very serious and I've accepted that I will never return to "normal." That said, I have still made more progess than any of the doctors said I would. More importantly, I am still making bits of progress - which they said was impossible. I take the best care I can of myself and I have fought hard to gain access to behavioral and cognitive therapy. The main thing is that I refuse to give up.

Hi Erica and welcome to NT! We all know what you mean when you speak of the "fog." While I'm glad to hear that you have been able to keep up your grades, I caution against being too quick to assume that all is well on the cognitive front. Unfortunately, we TBI folks are often not in the best position to judge our own performance. I knew I was having some issues, but until I had my neuro-psych testing, I had no idea how much things had changed.

Let's hope you've just got some brain fog. One way to help quantify it for the doctors is to keep a symptom journal. When the fogginess seems worse, write down what's happening: Where you were? What did you eat? Did you drink alcohol? Were you exposed to loud music or crowds? What were you doing? What were you doing the day before? etc... Doing that may help you find some triggers. For example, many of us find the fog rolls in with fatigue. I might get away with doing a big task - but watch out the next day.

Cheers
Hockey- thanks for your reply. I'm so glad that I found this forum. It really has been great to tell my story/ask questions and read about what other people are going through.

I have so many questions, and they keep coming to me randomly, hence the sporadic posting! BUT, those of us struggling with PCS are supposed to abstain from alcohol and anything that makes our symptoms worse, right? My question for everyone out there is how have you coped? I haven't had fun in months. All of my friends go out and drink every weekend like any other college student - the most fun I have is reading a book or watching tv. For those of you who have had PCS for years, do you not even exercise? Exercising has been a HUGE part of my life and I just don't know how much longer I can go on like this. I've mentioned in other threads the buffalo study, which introduces pcs patients back into regulated and supervised exercise. But what if it doesn't work for me?

These are just all things that run through my mind with all the idle time i have on my hands. Any thoughts/words of advice/stories/etc. would be greatly appreciated.
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