In addition to the PN symptoms, I have had joint aches and pains, a swollen knee with fluid, problems to eye nerves, inflamed sinuses and infections, and fatigue. Over time, my white blood cell count got lower and lower, and I stopped making antibodies to bacteria, IgG antibodies, to be precise. My CD57 level became very low, which is also typical. But mainly, it was neurological. I have symptoms of Bartonella: this affects the lining of blood vessels, and I get a new kind of "migraine", an absence phenomena that is due to extravasation of fluid around blood vessels: blind spots and numb spots on my fact and tongue or lips. I also have very cold hands, and feet which hurt when I put them on the ground, which is said to be typical of Bartonella. My adrenals pooped out and my cortisols were low. I became hypothyroid.

All this can be attributed to lyme, with the central findings bartonella.

Everything got better with treatment of the lyme until this winter, when I had a set back. But I can now say that I am improving from the setback. It seems that my adrenals were not doing well again, and my BP has been exceedingly, terribly low, which is why I've been so weak. This is improving and I am doing better.

I am now on Diflucan and beginning grapeseed extract. I am taking higher doses of circumin than before, a long acting kind, which may or may not be helping. An osteopath is working on my neck, because I was afraid that tension in my neck might be affecting how my body deals with changes in gravity, like standing up. I don't know if it was reasonable, but I do think getting better is coincidental with him at least. My BP has been running in the 80s over 40s - 50s. when I'm lightheaded. It's probably lower at the times I really feel like I'm going to pass out, but I hadn't bought the blood pressure cuff then, and now that I have the cuff, I'm getting better.

A friend says it's the talisman effect. Carry around the cuff and I won't pass out!

Best to all

LizaJanee