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Old 04-12-2010, 10:11 PM
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
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Jaimee - - I hear you on the 'lump diagnosis'. My GP first sent me to a rheumatologist who said (when the blood work came back) - nothing specific shows up ... but you either have CFS (chronic fatigue syndrome) or fibromyalgia. I can give you a script for Lyrica!!

I declined the script - declined to see the rheumy again - - and put my search for a dx off for about another year or so!! Then things got worse enough for me to open Pandora's box once again!!

Better results with neuro - - though the first one did a bunch of tests (none for MG) and referred me to another neuro!! I did go to another neuro - but not the one he was pushing!! Luckily, I got my dx really quickly with the second neuro....and have been on Mestinon ever since!

Sometimes it takes awhile, but there are good docs out there who will sift through all the info and test results. Just always trust your instincts about whether or not you are comfortable with the direction things are going - -and keep searching if necessary.

Good luck!
Sue
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