Oh, Christian, my heart is breaking for you. You have been in my thoughts and prayers.
Now -- to further action. Like "p" said, contact ALL of your state and national legislators -- you can do this via email -- and they WILL stay on top of this. I would ALSO contact newspapers and TV stations. At a time like this -- with the health care at the TOP of the news, YOUR story should be a great human interest piece. Remember the squeaky wheel gets the grease!!!