Deb - you and I are so similar, double dq1, gluten sensitive, etc. I will add this to my list to check out, too. Sounds like your neuro is pretty sharp. Thanks for this piece of the puzzle.

I have my first neuro appointment scheduled and have a laundry list of questions. My biggest concern is that this is hereditary, not acquired due to gluten sensitivity like I've been thinking these past six months. If it's hereditary I'm afraid there isn't going to be anything I can do to stop it. My dad has severe PN in both legs up to his knees, both sensory and motor. He's fallen a number of times because he trips over his feet. I'm desperately searching for answers so I don't end up there when I get to be his age. He's never been to a doctor for it, so we don't know the cause.