BUT, you can't just sit back and WAIT!

I am near a few teaching hospitals, and I just dialed from my plan's covered doc's list in the region! I got an appt in one week w/the head of one hospital's neuro dept [he was asst head at the time]. It was luck, but in the setting up of this appt the two other 'major hospitals' had appts to be had within 3 weeks of call. Hey, I took the first I could get! I struck gold and can still walk. [Umm, except when I keep breaking feet]

A couple of years later I had a referral from another neuro about continuing IVIG..to a different hospital neuro dept head..That neuro head flatly stated that 'IF I had CIDP, I'd had to be in a wheelchair!' I replied: I am NOT because I received the IVIG in time, and, asked for and received PT-- Sooo I'm NOT in the chair, thank you! You could see the gears turning and squeaking a bit in the re-thinking of things and conceded I just might be right.

Usually the chief cheeses see us when it is too late! Don't give up or give in!!! It's your life at stake and the ability to live it well.

Have faith in yourself and find a doc who has a bit of faith in YOU! Hugs-j