Hi,
I found out that I have this as well. My sister was diagnosed by her Dr after she tore her ACL (it has been torn for 3 years now).

I have had many joint sublexations, headaches, bruising etc and very hypermobile joints. Since we just found out about this, I have been trying to learn about it and have seen personal trainers to help me rehab after injuries so that I don't do further damage.

I am also in the process of having my heart checked, although I just found out that my mom and aunts have murmurs and need observation.

I am always looking for information on this and how to keep from injuring myself further.