Quote:
Originally Posted by legzzalot
Going in for another infusion today. According to the MRI since starting Ty I not only continued to grow new lesions but now I have a few that are showing up as active. Been over a year since any of them have been active with the contrast. So I am destined to another 3 rounds of Ty before we do another set of pictures and if there isn't a huge change then she is puling me off of this and sending me in for clinical trials because I refuse chemo.
If this is the miracle drug, why do I feel like I am playing russian roullette every month?
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Sorry your MRI is showing new and active lesions

How have you been physically ? Wondering if Ty was ever the med for you

After the first couple months physically I did better, progression halted and my MRIs showed no new or active lesions. These are the reasons I have been such a Tysabri cheerleader.
Best wishes,
Linda