Well, she didn't know enough to run the entire Acetylcholine Antibody panel. You should've had binding, modulating and blocking antibodies done. And did she send it off to Mayo or somewhere equally adept at the test? Quest Diagnostics is often "wrong" when running it.

http://www.aruplab.com/guides/ug/tests/2001571.jsp

3% - 4% of MG patients only have the modulating antibody, which she would know if she were an expert. I am one of those few.

I should add that different labs have different determinations of what is positive. This lab, for example, has an "indeterminate" reference range for the modulating antibodies while the Mayo lab does not.

There are other drugs that can affect those tests, like Advair or Flovent. Any steroids will. And IgG deficiency will affect them as well (they would be lower or negative if you had a deficiency and did have MG AChR antibodies).

With a disease like this, it's always best to be diagnosed by an expert, or have it ruled out by an expert. You can always have a "regular" and nice neuro follow you after that.

Anie