When was the last time you saw Dr. S? Since you were a coma patient and you are in such pain now, why don't you call him and get some advice from his office? And when did you last try the pump? I wouldn't give up on the idea. Never, never dismiss something until you've you've looked at it from all angles. Perhaps you need a different medication in the pump to offset the alloydina. To me it sounds like you've given up on a lot of treatments, but maybe you can't afford to do that because you are so sick.
Keep an open mind. One thing I did a month or so ago was taper down off all my opiods. I got tired of being tired and depressed. I discovered that without my Fentanyl and oxycodone I'm in a whole lot of pain, especially when it rains. So I went back on them, but on lower doses. I'm definitely not as depressed as I was, and the meds are 75% working, except when the weather is really bad, then they are only 50% working. I saved some of my stronger patches just in case I find that I want to use them.
Can you try ketamine again? Does that remain an option for you? When did you go to Germany?
How far are you from Dr. K? Would some infusions help you at all? I don't know what kind of insurance you have and what he is willing to accept.
I'm so sorry that you are having such a hard time. Where is your family? Can you connect with your parents or siblings for a while and try to get a handle on a treatment that is right for you?
I'm just throwing out some ideas because you've had some very sad postings in the last 5 months or so.
Wishing you the best of luck, XOXOX Sandy
Quote:
Originally Posted by CZZ74
thank you for the suggestion of the morphine pump, i was interested in all pumps, but am not a canidate. I had a port for one month and it caused havoc with my body activated full body alloydina and infection my body rejected it. Dr. S said i am not a canidate for anything implanted. Unfortunately. But I appreciate the suggestion. dc
|