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Old 01-29-2007, 01:16 PM
lahgarden lahgarden is offline
Junior Member
 
Join Date: Sep 2006
Posts: 37
15 yr Member
lahgarden lahgarden is offline
Junior Member
 
Join Date: Sep 2006
Posts: 37
15 yr Member
Ooo hey fellow SCD'er!!!!!!!

Hi Dorvad,
How are you doing?

Short term paralysis? Sorry, no I can not say that I have that...........but it seems that I have EVERYTHING else that you can imagine.

How long for you to get dx'd from first symptom?
How low was your b12 levels?
How much b12 do you take?
What form?
Do you have any other health issues that may be involved?

My neuro thinks that the Medullary Sponge Kidney Disease that I have may have something to do with this.

Retesting me for some sort of mitochondrial thingie.

What are your symptoms?
Do they come and go regularly?
Do they sneak up on you in an "attack" or "flare up"
tell me tell me!!!!

thanks
lah

ps: with regard to the levels,
I read on the back of my GNS Gold Standard vitamins that my DH gave me for Christmas,
(and that may or may not -doc thinks not-have boosted my 700 level to 821--but did not prevent another nasty attack)
-any way on the back of the bottle it says
150 mcgs = 2500% of the RDA
so
no wonder he was flabberghasted at the 1000mcgs weekly for 8 months leaving me still with such low levels........
he just couldn't stop saying over and over "1000 mcgs!!!"
we even stopped at his collegues desk to chat about it on the way to the nurses station with my chart.
He tells the other doc and that guy says, "Gee, there's a real problem there"
no kiddin'
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DX: 1/2006 Subacute Combined Degeneration
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