[QUOTE=Jaimee;642525]Hi all! My name's Jaimee. I'm in the process of being checked for Myasthenia Gravis after 3 yrs of misdiagnoses, theories and assumptions. I go to the Neuro Monday and really have no idea what to expect, but I'm hopeful for answers. I'm a mom of 4 little ones and this has been a struggle. I think more than the weakness, trouble and sometimes even pain, I struggle most with people not seeming to believe that I'm having trouble! I guess because they can't always see my weakness or difficulty or because they haven't seen me at my worst... I am wrestling with my attitude right now because I would love to just rub it in everyone's faces when I finally do get a diagnosis. But more than anything, I want to feel better and stronger and more able to care for my family and follow through with the things that I'm passionate about.

Anyway, I'm wondering-- What can I expect from my first appt. with the Neuro? It's been 2 years since I've been to a Dr. and the last round eliminated MS, Meniere's disease, fibromyalgia, lyme disease, and chronic fatigue syndrome... but brought up the question of Hemiplegic Migraine (w/o head pain)-- I know! Crazy!



gidday jaimee I have been diagnosed for 3 years now, I was diagnosed by an optician after been accused of being a time and health resource waster by a specialist ???
anyway when I finally got to a nuero, anti bodie test first, positive for me but not always for everyone, next test was the electric machine ??? measures muscle response , stick fine needles into muscles and watch machine?? next electro shock of muscles and measure respone or something like that ( not pleasant ) was on mestinon and prednisone for a few years but now have progressed to immuglobin and plasma exchange, rest is essential regards johnc666