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Old 04-17-2010, 03:37 PM
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Join Date: Aug 2006
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Lady Lady is offline
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Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Besides all the paperwork involved. Acorda didn't expect so many people to be asking for the drug, at the moment it became available. I think they didn't make enough of the drug to go around. JMO

Few have received it. Many are waiting. How long? Who knows. This is just what I heard from a reliable grapevine.

I assume they don't wish this known to the public so they will try to blame the Neuro's, case managers, lose signed forms, or send papers by snail mail.

I am sure it will be available, but like any new drug, it takes time. I hope all those waiting will hear soon or get it from them or your pharmacy soon.

We are a population who hates to wait. That is reasonable to understand. MS doesn't wait. When you want to try a new drug there will always be blocks in the road. They always make us jump threw hoops to get what we want.

Many times there are shortages in drugs, even those that are not new to the market. Maybe they want to see how many are going to try it so they can make what they need for a steady supply.

You can't just start it and then not get the next refill. They are probably preparing themselves.

That's just my opinion.

I am not one of these people who will be taking it, but for those who are, I wish you the best. Go to the Acorda website and send an email to them. that's the way to be heard.

http://www.ampyra.com/hcp/
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"Thanks for this!" says:
barb02 (04-17-2010)