Its not nonsense... noone understands no matter how long we live with them or know them unless you live the rsd everyday. Its really hard, but for me when i just tell myself they dont understand ignore it... I can stand up mentally and move forward. stay strong pick your chin up and lets say a prayer for strength and wisdom in our words, and the understanding and compassion from our family.

I am doing so much better after my ketamine infusions but I still am slower and have achy pain, and get tired early in the day. My family still doesn't understand that while I have less pain i want to be gone and doing things all the time because I dont know how long this feeling will last. It could be 10 years or 10 days... or 10 minutes. Even while better than before it is still a fight to stay above water. I look at it like a marathon run, we just have to keep going no matter what because we don't have any other choice. I got in a fight with my mom yesterday and it spiked my pain. Hang in there, and don't worry. We all rant and rave and i am sure there are hundreds out there feeling like you do. Take 5 minutes and close your eyes and do some meditative breathing to calm your nerves... here's to a peaceful Sunday.