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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Fame, no fortune...
My neuro and I did the media interviews today about Tysabri and the news reported at the AAN last week on vision improvement, fatigue and cognitive improvement and quality of life improvement.
It was a very long day, started at 6:00 a.m. and went until noon. I was up at 4:00! We did 18 interviews, both televison and radio, with one radio interview going out to 4 different stations in NJ and NY and a national news feed that was taped for later use.
It was interesting to see how the media side works, and my doc made a threat or two to me when he was attacked by the makeup woman. All of the folks involved were very professional and very helpful. They did it at a seaside resort that isn't open yet for the season so we had the place to ourselves, beautiful place with a beautiful day to match. I spent an hour outside sitting by the ocean afterwards and it was sunny and warm and just lovely!
It was a long day and I need a nap! Hopefully the information presented will be helpful to those who are considering Tysabri or on it.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
. I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09 .
Negative for JC virus antibodies! .
I'm doing alright and making good grades,
The future's so bright, I gotta wear shades! .
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